COE Rare
Disorder
Registration
Access a trusted network of hospitals, Centres of Excellence, and metabolic specialists for diagnosis, treatment, and long term care.
Registering at a Centre of Excellence (COE) is the first step to access specialised diagnosis, treatment guidance, and government support for rare metabolic disorders, confirming the diagnosis and enrolling the patient in national rare disease programs for eligible financial and treatment assistance.
01
Prepare and Carry Required Documents
Take all your documents - Prescription, Films if any, Aadhar Card, ESI Card if any, UDID Card to the nearest Centre Of Excellences (COE) Genetic Department and meet the
concerned doctor.
02
Book a Genetic Specialist Consultation
Then you will get an appointment with the genetic doctor for assessment in the OPD.
03
Clinical Assessment & Diagnosis Review
They will assess, counsel and reconfirm the Diagnosis.
04
Submit Documents for Rare Disease Registration
Then the papers are submitted for the Rare Disorder Registration.
05
ESI / Government Employee Eligibility Verification
In case the parent is a government servant or is an ESI Card Holder then the child will get the treatment help through ESI hospital.
06
RDP Registration & Patient Enrollment
Otherwise the parent will be registered under RDP registration.
07
Begin Government Treatment Support Process
Once the registration is done then the treatment support from the government will start.
We connect families to metabolic specialists, licensed dieticians, and trusted providers of medical foods and medicines.
